FAIR4Health

Overcoming ethical, legal, and technical barriers to implement FAIR data principles in health research institutions

About the Project

FAIR4health focuses on overcoming the ethical, legal, and technical barriers that limit the exchange and reuse of health data in the European Union. The project aims to implement the FAIR principles (Findable, Accessible, Interoperable, Reusable) in the health research sector, ensuring that data can be easily discovered, accessed, and used by researchers in a manner that complies with ethical and legal standards.

By analyzing the challenges specific to health data, FAIR4health works on developing strategies to facilitate the implementation of FAIR data policies across health research institutions. The project employs a FAIRification process based on the GO FAIR initiative, which addresses the necessary ethical, legal, and technical considerations, ultimately promoting the responsible and effective use of health data in scientific research.

Characteristics of the Project

Project type: European Project

Duration: 2018-2021

Objectives of the Project

  1. Support the FAIRification of data by focusing on data quality, certification, interoperability, and ensuring the reproducibility of research.
  2. Develop pathfinder use cases that demonstrate how data sharing and reuse can lead to groundbreaking innovations in products, services, or treatments.
  3. Generate a prototype of the innovative product, service, or treatment developed through data sharing and reuse.
  4. Involve at least 10 different EU countries in the consortium to ensure broad collaboration and impact across Europe.
  5. Increase the visibility of the Commission’s open FAIR data policy through communication activities and networking with relevant actors, including industry stakeholders.
  6. Enhance the reproducibility of research, foster cross-fertilization of interdisciplinary research, and promote citizen science to generate added value for science, the economy, and society.
  7. Boost innovation in the EU Digital Single Market by generating value for innovative companies, including SMEs and start-ups.
  8. Monitor key performance indicators (KPIs) such as the increase in the use of FAIR data within identified domains and the contribution of use cases to developing services based on innovative data sharing and reuse.